NEED HELP!!! heart transplanted son
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From: mich
NEED HELP!!! heart transplanted son
here is a story about my son and a website to help with transplant costs, (www.cotaforalexg.com) any help would be greatly appreciated and even if you can't contribute post in other sites you may belong in or say a small prayer for us . I am an avid rider of a 2000 cbr600 f4 and have been staying at the hospital since May3. thank you all!
Alex was born (October 29, 1994) with a congenital heart defect called hypo plastic left heart syndrome. His first open heart surgery was at five days old, second at five months old, third at fifteen months old and his fourth at five years old. After his third surgery Alex developed a side effect to the condition that caused him to lose protein requiring the fourth surgery. Alex has required medical treatment for this condition on a regular basis.
In February of 2010 Alex’s cardiologists recommended we see the transplant director to discuss listing Alex for a heart transplant.
Alex was officially put on the waiting list for a new heart on May 5, 2010. On Friday May 7, 2010, while in the Intensive Care Unit at Children’s Hospital of Michigan, we received a call from the transplant coordinator to tell us a heart has been found. Early Saturday morning May 8, 2010 Alex’s new heart was transplanted.
Currently, Alex is remains in the I.C.U and is being treated for humeral rejection. The treatment requires an 18 day protocol to administer chemo drugs in hopes of eliminating the antigens that are attacking the new heart. Alex is one of 8 people in the country and the first in Michigan to receive this treatment for humeral rejection. There is no other treatment for this type of rejection and are on a third round of the 18 day protocol.
We remain hopeful and appreciate all who have come to help and support us, THANK YOU ALL!!
Alex was born (October 29, 1994) with a congenital heart defect called hypo plastic left heart syndrome. His first open heart surgery was at five days old, second at five months old, third at fifteen months old and his fourth at five years old. After his third surgery Alex developed a side effect to the condition that caused him to lose protein requiring the fourth surgery. Alex has required medical treatment for this condition on a regular basis.
In February of 2010 Alex’s cardiologists recommended we see the transplant director to discuss listing Alex for a heart transplant.
Alex was officially put on the waiting list for a new heart on May 5, 2010. On Friday May 7, 2010, while in the Intensive Care Unit at Children’s Hospital of Michigan, we received a call from the transplant coordinator to tell us a heart has been found. Early Saturday morning May 8, 2010 Alex’s new heart was transplanted.
Currently, Alex is remains in the I.C.U and is being treated for humeral rejection. The treatment requires an 18 day protocol to administer chemo drugs in hopes of eliminating the antigens that are attacking the new heart. Alex is one of 8 people in the country and the first in Michigan to receive this treatment for humeral rejection. There is no other treatment for this type of rejection and are on a third round of the 18 day protocol.
We remain hopeful and appreciate all who have come to help and support us, THANK YOU ALL!!
I'll be the first to wish Alex and yourself the best of luck on here. I know you have a strong son under your wing having read what he has been through already in his life.
May God be with you and your family.
May God be with you and your family.
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